This is ADR UK's response to the Sudlow Review from Health Data Research UK. The consultation gathered input from stakeholders and members of the public on heath data in the UK.
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In this response to the Information Commissioner's Office (ICO)'s call for views, we discussed the use of different terms, accessibility, and the importance of protecting the value of data for research in the public interest.
In this response from ADR UK regarding the ICO call for views: anonymisation, pseudonymisation and privacy enhancing technologies guidance, we have discussed the complexity of anonymisation, the uses of functional anonymisation, and the relations to other guidance.
The ADR UK partnership has responded to the NDS ‘Data: a new direction’ consultation. We discussed the importance of public engagement, of discussing the public good arising from data linkage, and the importance of functional anonymization.
The ADR UK partnership has responded to the second government consultation on the UK National Data Strategy.
ADR UK's response to the open call for evidence for the UK's Government's National Data Strategy, submitted 15 July 2019. The Strategy is being developed by the Department for Digital, Culture, Media & Sport (DCMS), with a draft due for consultation later in 2019.
