How do we work with the public?
ADR UK is dedicated to ensuring people’s data is used in a way that reflects the public’s views and has public support.
In line with our values, we have a programme of ongoing public engagement activity, and more in the works, to make sure the research we enable accounts for the interests and concerns of its data subjects and the groups it hopes to benefit.
Public attitudes towards administrative data research
A clear understanding of public views towards how administrative data should be used for research is important for maximising the public benefit of our work. As highlighted in our review of existing literature (2020), previous studies have shown that the public is broadly supportive of the use of administrative data for research as long as three core conditions are met:
- Public interest – any research using administrative data must demonstrate that it is in the public interest and has potential to lead to tangible benefits for society;
- Privacy and security – data being linked and used for research must be de-identified, and protections must be in place to prevent it from being re-identified or misused;
- Trust and transparency – trust in those holding and using data is paramount; and transparency around how data is held and used is essential.
ADR UK’s structure and approach ensures that each of the three conditions outlined above are at the core of everything we do. You can find out more about how we maintain them on the Ethics & Responsibility page.
ADR UK’s public engagement activities focus on exploring people’s interests and concerns in relation to specific areas of research, building upon the findings of the broader public attitudes work previously done. This involves engaging with the sub-sectors of society that each of our projects hopes to benefit, or with a cross-section of society on a particular aspect of the use of administrative data. This may be either directly or via relevant community representatives – for example, charities, NGOs and community groups – to allow us to account for the interests of those whose lives the research affects.
We continue to monitor and respond to any changes to public attitudes that may be identified by other, broader attitudinal work going forward, and will adapt our approach in light of these where necessary.
You can find out about our main streams of public engagement, and some of the activities underway across the ADR UK partnership, below.
Public panels are a growing element of ADR UK’s public engagement work, providing a platform for members of the public and third sector organisations to offer valuable feedback about our work.
The SAIL Consumer Panel for Data Linkage Research was established in 2011 and acts as a public voice in ADR Wales' work, providing input on governance systems, public engagement plans and research practices. The Panel allows ADR Wales to explore the public’s perspective on data linkage research and provides opportunities for members of the public to join research study teams. The Panel currently has 16 members, with ongoing recruitment.
ADR Scotland’s Public Panel, set up in 2019 and maintained by the Scottish Centre for Administrative Data Research (SCADR), ensures members of the public are consulted on and involved in the administrative data research undertaken by ADR Scotland. Made up of members of the public from across Scotland, the panel allows ADR Scotland to test assumptions about public perceptions regarding administrative data research and involve the public in determining what ‘public good’ means in this context.
Additional public and expert user panels are currently in scope for consultation and advice on specific areas of ADR UK’s research. Keep an eye out for more information coming soon.
Working with the third sector
Engaging with Voluntary, Community and Social Enterprises (VCSEs), NGOs and other relevant third sector organisations as both consumers and drivers of administrative data research allows ADR UK to understand the research needs of specific communities and sub-sectors of society. It also empowers these groups by offering the opportunity to influence the direction and outcome of research.
The Administrative Data Research Centre Northern Ireland (ADRC NI) holds a Data Workshop Series around themes of interest to both researchers and local organisations. These focus on: raising awareness among VCSE groups about the power and potential of data in their own work; how complex questions can be answered using data; raising public acceptability and demand for the sharing of data for research purposes; and establishing and embedding positive working relationships with the VCSE sector.
By bringing key stakeholders onto steering committees for each of its projects, ADRC NI maximises engagement with people and organisations with differing expertise and knowledge of the issues researchers are exploring; and gains buy-in and ownership from people and organisations who can turn research findings into policy and societal change.
ADR Scotland conducts project-specific dialogue involving engagement with third sector organisations, community groups and other representatives able to speak on behalf of the publics and communities relevant to each of ADR Scotland’s projects.
Meanwhile, ADR Wales holds stakeholder workshops with devolved and local government and third sector organisations, to get feedback on work already done and gain input on future work. The workshops provide an opportunity to tap into others’ expertise and receive valuable insight on projects using administrative data.
The Strategic Hub is currently working with a number of project teams to form panels of third sector representatives to facilitate engagement with relevant communities for these projects.
If you’re from a third sector organisation interested in working with ADR UK to increase a community’s representation in our work, please get in touch.
ADR UK runs a number of public talks and seminars to allow individuals and communities to learn more about what we do and the motivation behind our work. We also participate in external public events throughout the year to raise awareness about our work and engage with interested communities around the UK.
Find out more
If you are a VCSE representative or an interested member of the public you can also get in touch to hear more about ways of getting involved with ADR UK’s work.